Some facts about cystic fibrosis
Cystic Fibrosis (CF) is a genetic disease affecting major organs including the lungs and pancreas
1 in 4 people with a CF-related lung exacerbation will not return to their previous lung function
CF affects a person’s ability to clear their airway, allowing bacteria and viral infections to settle in the lungs and airways
The average person will be admitted to hospital once per year to manage a lung exacerbation
About BEAT CF
We are a network of Australian researchers, clinicians, allied health professionals and community members aiming to optimise the medical management of cystic fibrosis lung exacerbations (flare ups).
Info for participants
BEAT CF Platform: Participant journey
BEAT CF Platform: Info for kids
BEAT CF Platform: Randomisation Q&A
People enrolled in the platform
Active sites
Latest news & events
Survey to find out what matters most to people with CF
Researchers from Telethon Kids Institute are conducting a survey to understand what health outcomes are most important to people with CF.
Ethics & governance approved at PCH for BEAT CF platform
We are excited to announce that the BEAT CF platform has received ethical approval from the Child and Adolescent Health Service Human Research Ethics Committee at Perth Children’s Hospital.
Paper published by BEAT CF investigators
The BEAT CF investigator team has published a paper in the Journal Frontiers in Pharmacology. The open access article explains the need for novel trials in cystic fibrosis and provides a foundation for the BEAT CF study.
Survey to find out what matters most to people with CF
Researchers from Telethon Kids Institute are conducting a survey to understand what health outcomes are most important to people with CF.
Ethics & governance approved at PCH for BEAT CF platform
We are excited to announce that the BEAT CF platform has received ethical approval from the Child and Adolescent Health Service Human Research Ethics Committee at Perth Children’s Hospital.
Our research collaborators
This project is funded by a Medical Research Future Fund Grant (GNT1152376)
This project has been approved by the Child & Adolescent Health Service Human Research Ethics Committee. RGS0000001265